Wow, where has this year gone? I can’t believe we are already heading towards the end of October. And I still have so much I want to have completed by the end of the year. And I’m definitely running out of time… fast!
One of the projects I had expected to have finished long before now is the publishing of the audio book of my memoir, A Different Way of Seeing: A Blind Woman’s Journey of Living an ‘Ordinary’ Life in an Extraordinary Way. After all, the book was published a year ago tomorrow.
Somehow 2021 has been swallowed up by the writing, launching and marketing of my guide dog Fiji’s book called Paws for Thought: Seeing the World Through the Eyes of a Guide Dog. Fiji and I started working on the book in January 2021 and published it in September – a whole lot faster than any of my earlier books!
Somehow I never seemed to get around to the next steps in the process to launch my audio book. Till now.
Over the past two weeks I’ve listened to the recordings of the book and have once again been reminded what an amazing job my narrator, Julie Norman, has done with the book. It is sounding fantastic!
Now that I know the recordings are ready to go it is time for me to investigate getting the book into the various outlets that sell audio books. So that will be the next, and hopefully the final, step in what has become a much more complicated project than I originally expected.
But it will be available soon… after all, it’s been long enough!
As an aside, I am also working on the audio versions of my children’s books, so watch out for more information on that project as well.
A few days ago I found myself wondering how many podcast interviews I had done relating to adaptive sports and activities. When I looked back through the podcast feed I was excited to see how many there were. Today I’m going to share a few past episodes with you in the hope they might inspire you to discover how various activities can be adaptive to become more inclusive for persons with special needs.
Our first foray into accessible activities was in episode 5 (December 2018), when I spoke to Angelique le Roux of Ceres Zip slide Adventures. I found it fascinating to hear how they make ziplining available to persons with a wide range of different disabilities. And, even with my atrocious head for heights, I found myself wondering what the experience might be like. Find out for yourself by listening to the interview at http://iono.fm/e/638621
On episode 14 I interviewed Roxy Davis of Surf Emporium about the adaptive surfing clinics she runs. That was all the way back in June 2019. You can listen to the episode at http://iono.fm/e/696018
In other episodes I’ve spoken to people about accessible safaris (Episode 32 – http://iono.fm/e/828914) and ocean cruising, (Episode 34 – http://iono.fm/e/845329
Then, in my most recent episode I chatted to a team who run an adaptive scuba diving organisation. Again, I was excited to hear how they are able to accommodate people across a wide spectrum of abilities. So much so that I am hoping to give it a go myself in the next few weeks. You’ll find that interview at http://iono.fm/e/1110127
I have always maintained that I constantly learn things from the podcast interviews I do and certainly my eyes have been opened to so many different opportunities and activities that are available to those of us living with a disability. And I think that is wonderful.
Want to know what my next interview on an activity will be about? Well, I know that the first South African adaptive paraglide took place in Cape Town recently. And I’ve already reached out to the people concerned to see if they’re interested in being interviewed. So maybe that will be next!
I’ve recently discovered a love of reading travel memoirs. While it in no way replaces the experience of exploring different countries and cultures, it does at least give me a taste of the travel I used to be able to do, and will hopefully be able to return to in time to come.
A travel memoir I read recently was Seeing a Slice of Southern Africa My Way, by Tony Giles – aka Tony the Traveller. It is the story of a trip Tony took to several countries in Southern Africa in 2004 and 2005. During that time he visited South Africa, Lesotho, Swaziland, Mozambique, Zimbabwe and Malawi.
As a blind and hearing impaired traveller, Tony describes his travels through his other senses, much as I do when I travel. Having said that, Tony is far more adventurous than I am and is always ready to bungee jump, go white river rafting or seek out other adventure activities, which he also describes with his customary sense of humour
There were a couple of things I found fascinating about reading about Tony’s time in Southern Africa. First, unlike me, Tony is happy to head out and explore the world totally on his own, trusting he will be able to find assistance should he need it. And, from what I read in his book, mostly he manages to do so.
Secondly, I found it fascinating seeing cities and countries that I’ve visited through the eyes of a stranger, and a tourist. I often find that tourists see a different side to a city than we do as residents. I found this especially true while reading Tony’s book. I felt a similar thing when my brother and sister-in-law visited Cape Town a few years ago and Craig and I got to see Cape Town through their eyes.
So, if you’re interested in discovering how a blind and hearing impaired man travels through several Southern African countries on his own, and experience the wonderous world of travel through senses other than sight, or if you simply want to get a taste of travel while we are still not really free to explore new destinations due to the global pandemic, I’d highly recommend reading Seeing a Slice of Southern Africa My Way by Tony Giles. And, if you enjoy it, you can try the other two books in the series so far: Seeing the World My Way and Seeing the Americas My way. I know I’ll be reading them in the near future when I have the urge to travel again, at least by book.
I’ve been hosting a podcast on accessible travel for 2 ½ years and have recently been thinking about why someone with no connection to disability might gain value from listening to it.
I believe one of the biggest barriers to the inclusion of persons with disabilities into society and the workplace is a lack of understanding of how we (persons with disabilities) live our lives. Because people don’t understand how we do things, they usually default to imagining that those tasks are not possible for us.
I understand why that barrier exists. On a fundamental level, why should someone with no link to disability know how we operate? It’s rather like expecting everyone in the world to know how a nuclear power station operates, how an orthopedic surgeon does their work, or knowing the intricacies of a retail store stock management system. For the most part we do not need to know and, unless nuclear power stations, retail store stock management or orthopedic surgery impacts directly on our lives, we simply accept that it does what it needs to do. Without needing us to know anything more than that.
Sadly, since many people have no direct contact with a person with a disability, the same appears to hold true. Except that statistics tell us that around 15% of the world’s population lives with some form of disability. Which means that for every eight people we encounter, one will have a disability, whether visible or not.
In the past few years we have seen a growing awareness of the need to understand the realities of those whose experiences have been different from our own, to be more open to diversity of race, culture, gender, age. Yet somehow the question of ability seldom gets mentioned when the question of diversity is raised. I believe it should be part of that conversation as well.
Which brings us back to why someone with no contact with disability might gain value from listening to my podcast about accessible travel.
- To learn a little about the barriers the world sets up for persons with disabilities,
- To learn about the tools and techniques we have at our disposal that allow us to overcome the obstacles we face,
- To see the strength, resilience, skills and talents that help us achieve what we are passionate about,
- To understand that we are just the same as persons without disabilities in terms of what we love to do,
- how we want to live our lives, and experience the world – it is just the way we may do it that may differ
I love having the opportunity of chatting to people about their travel experiences. I learn new things in every single episode. However, I believe the greatest take-away I have gained while interviewing people is the knowledge that, though we may do things in a different way, our experiences and our love for travel are exactly the same.
If you are someone who loves to travel to new places and experience different things, you may discover that the guests on my podcast have much in common with you as well.
Why not dip into the library of episodes of A Different Way of Travelling and see if I’m correct… You can find them at https://iono.fm/rss/chan/3715
Or on your usual podcast player.
Go on, give it a try!
In the past month I’ve written quite a bit about the books I’ve been reading. Which has resulted in a few questions about how I actually engage with books.
When I first lost my sight I had no idea of how I might be able to read books. Reading had been a fundamental part of my life since I learned to make sense of the written word and I was seldom to be found without a book, or several books, within reach. So I was terrified I might never be able to read again now that I was blind.
Over time I learned how needless that fear was.
As a blind person I have several different options of how to read. I can listen to a book on audio, just as you might listen to a book from Audible. In fact, many visually-impaired people are avid Audible fans and enjoy listening to books being read by human narrators.
I can also listen to a book on my phone or laptop, using the electronic voice of my screen reader, the application that reads whatever appears on the screen of the device. While this may sound like the most foreign of my reading options to someone who is sighted, it is actually my first choice.
The digital screen reader voice is mostly neutral in tone. It adheres to some spoken norms– dropping the tone at the end of a sentence, or raising it to indicate a question.
To me, this gives the closest experience to reading by sight. All too often I find human narrators interpret the words they’re reading. Which means I am somewhat restricted by their interpretation. Reading with a digital voice gives me the freedom to interpret the text and the story using my own imagination, just as I used to do before I became blind.
I admit that I’m part of a very tiny minority of blind bookworms who choose to read this way. Most seem to prefer human narration. Or using braille.
Braille is also useful as a way to read books. Either a visually-impaired person can read a physical braille book, or they can read a book on a digital device using a braille display. While I’m not really a braille user, which means it would take me months to finish a book that would take me only a few hours on my phone or laptop, I’ll be the first to admit that braille is a great way to read a book without requiring the use of one’s ears. For many people, that can be an advantage. Or in some cases, especially for those who are deaf-blind, a necessity.
So there are several ways I could choose to read as a blind person. I want to stress that none of these choices are better or worse than the others. It is entirely a matter of personal preference.
Regardless of how I engage with books, the important thing is that I have several options as a reader who is blind. So I need never be without books, as I thought I would be when I first lost my sight, the memory of which still makes me shudder. And then reach for the comfort of my book reader to reassure myself that all is well with my book world.
It’s been a while since I updated you on Fiji’s book. And things are starting to move fast now!
Fiji and I have finished creating the content and the book has been proofread. Our next step is to add the photographs and to create a cover for the book… with Fiji on it, of course. Then we need to start shifting into the publishing and marketing phase. Which is going to be exciting for us both!
To my surprise, the book has turned out to be 27 000 words. Considering I anticipated it would be around 20 000 at a stretch, I was amazed to find it just continued to grow. Fiji and I kept adding stories. It’s been so much fun creating a book about Fiji’s perspective of the world. And those who have read it so far, including her puppy walkers, said they enjoyed it.
We can’t wait to share it with you! It will still be a while before it’s available. In the meantime, here is another short extract from the book. This time drawn from what happened when Fiji and I arrived home after being on guide dog training.
Here’s how Fiji remembers that experience:
“Mom and the man had a serious conversation on the trip to wherever we were going. I heard my name a few times but couldn’t figure out what it was about. I rather enjoyed snoozing contentedly at mom’s feet, curled up and occasionally resting my head and my front left paw on mom’s seat. Whatever they were talking about I knew I’d be fine.
The car eventually stopped and I lifted my head to stare curiously around me. The man got out of the car and closed the door, lowering his window to let in some cool air since mom and I were staying in the car. Then he opened the front door and three dogs bounded out and ran onto the grass.
I immediately wanted to go and join them and tried to climb through the open car window. Mom grabbed my collar and held me back and I started to whine and wriggle to get to the dogs. So mom opened her car door and I took a flying leap out of the car and went to introduce myself to my new siblings.
Introductions were quickly made, amidst much tail wagging and tentative play. Emily and I became friends right away – she was seven years old but was still happy to play with me. At fifteen years old, Calvin was already ancient by then and was a little grumpy, and mostly ignored me. But that was okay, because I had lots to explore and mom and Emily to play with. The third dog, Eccles, was mom’s retired guide dog and she seemed to be friendly as well, though she didn’t really want to play much either. She also tried lecturing me on how to look after mom best – as if I needed to be told! Still, I thought it would be disrespectful to ignore her so listened to what she had to say… before rushing off to explore some more.
Eccles and I had a polite conversation about who would get to sleep beside mom on the floor next to the bed. She felt she ought to retain that right. But I told her it was my spot now, since I was mom’s proper guide dog. The conversation went on for quite some time. And eventually we agreed to take it in turns – with whomever got there first winning the coveted spot. Which, of course, meant that I got to sleep nearest to mom most nights. Because I was so much younger and quicker than Eccles, and would race to the bed as soon as we’d had our night-time biscuits.”
We’ll let you know how to get hold of the book soon, I promise…
I’ve had a YouTube channel for years. But I’ve never really done much with it. Okay, I’ve used it to post videos of my speaking, of Fiji and I working, and a few fun videos of my beloved dogs. But very little beyond that.
In 2017 I uploaded a video of Fiji and I riding on an escalator. I thought the cutest part of the video was that Fiji is wagging her tail all the way down the escalator, clearly loving the work she’s doing.
And for years that video limped along, being viewed every now and then by a curious YouTuber. Until the last few months.
Suddenly I began getting a stream of notifications from YouTube telling me that people were watching the clip. These were interspersed with notifications that people were following my channel. And I began paying a lot more attention to what was happening on YouTube.
Over the space of two months my subscribers leapt from just over 100 to 615. And the number of views of that specific video clip rocketed from a few hundred to over 204 000.
It s made me realize the power that YouTube can have. And that I need to be more strategic about sharing videos, especially if they include my beautiful Guide Dog Fiji!
So, watch out – we’ve got lots more videos in our plans!
PS: Here’s the link to that particular video. Why not take a few seconds to watch it after all, more than 200K people must be on to something! https://youtube.com/shorts/exDSDDDrKWM
At a recent online presentation, I was asked to explain how I cook food. I explained a few of the techniques I use– how I chop vegetables, how I work with a hot saucepan without burning myself, how I know when food is cooked, and other simple techniques I use.
My explanation was greeted by various comments on how inspiring I am. Which bothered me.
I guess, as an inspirational speaker I should feel happy to be told I inspire people. And, if I’m talking about how I made the decision to move forward with my life after losing my sight, or strategies people can use to move past the challenges they encounter in their own lives, then I’m okay with being considered inspiring.
However, I don’t believe that talking about simple techniques I use to accomplish tasks in my life should be seen as inspirational. To me, it would be a bit like telling someone they are inspirational because they learned their six times table, or that they were able to tie their shoelaces.
We all learn new skills and techniques as we go through our lives. In my case, the techniques may differ from those a sighted person uses. But they are no more complicated… and no more inspirational.
Which is why I chose to write A Different Way of Seeing – to try and explain how simple many of the techniques I use to accomplish tasks are. And to explain why accomplishing those tasks should not be seen in any other light – they are simply techniques I’ve learned. ,
I know it may seem like I am being dismissive of the response I get from audiences when I speak. That definitely isn’t my intention – I appreciate that people may be moved by my story and the lessons I share to help them tackle their own challenges. I’d simply like people to understand that persons with disabilities do not feel comfortable being lauded for simply learning their six times table… or equivalent skills.
It was such an honour for me to be asked to participate in last month’s Shift Online art festival hosted by the Unmute Dance Co from Artscape Theatre. I’ve been impressed by the online performances shown on the YouTube channel throughout November. They have featured some talented artists from across Africa and the world and, of course, from here in South Africa. So it was really special for me to be asked to contribute to the festival.
There were two segments focusing on my work. The first was a mini-documentary that was premiered on Sunday, 29 November, which featured videos of me talking about my work as a singer/songwriter, author and motivational speaker.
Themba Mbuli, Creative Director of Unmute Dance Co, was responsible for putting the content together into a mini-documentary, and he did a really great job.
Here’s the link to the mini-documentary: https://youtu.be/l50KD6d8f5o
A second segment was released on the penultimate day of the festival, Wednesday, 2 December and featured me talking about how I wrote one of my songs – Here Be Dragons – and a little about how I play keyboard. Also featured in that segment was a solo performance from Lone Loh.
Here’s the link: https://youtu.be/f0CUpXmC0J0
I can’t even begin to think of how challenging it must have been to produce a month-long art festival online during the COVID-19 pandemic. Full respect to Themba Mbuli and his team at Unmute Dance Co for such an amazing show! And congratulations to all the artists for their creativity in adapting their art to an online space.
PS: Don’t think that the festival is aimed solely at persons with disabilities – we are artists first, sharing our art with you. Our disabilities are just a minor part of who we are.
PPS You can also hear the first paragraph of my audio book on the mini-documentary.
A few days after I was declared blind, I chatted on the phone with my grandmother. During the conversation she asked me if I’d seen an article in the newspaper. Then her voice tailed off into silence. I waited for her next words, wondering why she had suddenly gone quiet.
When she next spoke it was to apologise profusely for her thoughtlessness in using the word “seen”.
This has happened to me regularly since losing my sight. when talking to me, people try desperately to avoid any word that is related to sight. Because they feel it might be insensitive for them to use those terms considering my blindness.
In some ways it’s sweet of them to try so hard. But it often makes a conversation a lot more stilted than it would otherwise be.
And, in truth, I have absolutely no problem with words relating to sight. Few of the blind and visually-impaired people I know do. We use them all the time. And most of us are totally okay with others doing the same.
Most recently a few people who have read my book have mentioned they initially felt a little uncomfortable with how often I use terms relating to sight. And people occasionally also mention it when they hear me speaking at conferences and events. But gradually, as they become more familiar with my style, they come to understand that my view of sight is simply a little different from what they are used to.
For me sight includes insights I gain from my remaining senses. Which is the reason my book is titled Ä Different Way of Seeing”
Because in a way I do still see… just a little differently from how I used to.
To get hold of a copy of my book, hop onto Amazon at https://www.amazon.com/Different-Way-Seeing-second-Extraordinary-ebook/dp/B08L1VFYS9