Disability Awareness

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What I’d Like You to Know about My Blindness07 – Sight-related Words

The image shows Lois speaking in front of an audience

A few days after I was declared blind, I chatted on the phone with my grandmother. During the conversation she asked me if I’d seen an article in the newspaper. Then her voice tailed off into silence. I waited for her next words, wondering why she had suddenly gone quiet.

When she next spoke it was to apologise profusely for her thoughtlessness in using the word “seen”.

This has happened to me regularly since losing my sight. when talking to me, people try desperately to avoid any word that is related to sight. Because they feel it might be insensitive for them to use those terms considering my blindness.

In some ways it’s sweet of them to try so hard. But it often makes a conversation a lot more stilted than it would otherwise be.

And, in truth, I have absolutely no problem with words relating to sight. Few of the blind and visually-impaired people I know do. We use them all the time. And most of us are totally okay with others doing the same.

Most recently a few people who have read my book have mentioned they initially felt a little uncomfortable with how often I use terms relating to sight. And people occasionally also mention it when they hear me speaking at conferences and events. But gradually, as they become more familiar with my style, they come to understand that my view of sight is simply a little different from what they are used to.

For me sight includes insights I gain from my remaining senses. Which is the reason my book is titled Ä Different Way of Seeing”

Because in a way I do still see… just a little differently from how I used to.

To get hold of a copy of my book, hop onto Amazon at https://www.amazon.com/Different-Way-Seeing-second-Extraordinary-ebook/dp/B08L1VFYS9
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Some International TV and Podcast Exposure

the image shows Lois speaking into a microphone

One of the best ways an author can introduce their books to new audiences is to talk on podcasts and media stations. I’ve had the opportunity to do so twice in the past few weeks.

The first interview was with one of my favourite podcasts, Blind Abilities. It was my third time being featured on the podcast – the first being back in 2017, and the second being a few months ago. This time the interview focused on the release of my book and a little of my background.

Jeff Thompson, from Blind Abilities, is a skillful interviewer and I have learned a lot about conducting interviews from listening to him. Which, in turn, makes me a better podcast interviewer… At least, I hope so!

You can listen to the interview at https://blindabilities.com/?p=6317

The second interview I did was with Accessible Media Inc – AMI for short – who are a cable station based in Canada. This one was a little more nerve-wracking as it was both a TV and radio interview. The team at AMI were fantastic in guiding me through what would be expected of me, even running a test call to check everything would work properly with the video and audio transmissions.

I am immensely grateful I’ve had the opportunity to become comfortable with platforms like Zoom and Skype in the last 3 years, so I was comfortable with the technology being used. It was just the concept of appearing on TV that made me anxious.

You can hear the podcast from the NOW with Dave Brown Show here.

I hope you enjoy listening to the interviews –they gave me the chance to answer questions about the book that don’t often come up when I talk about it.

Curious about the iPhone Apps I Use?

an image of someone holding a phone with two icons of an eye with a no-entry sign over and another eye open in a circle icon

I’ve been asked to share a list of the apps I use on my iPhone. So here it is, divided into blindness-specific apps and those that you probably also use as a sighted person. I haven’t listed all the apps that come standard on an iPhone, only those that I’ve added to my phone.

But, be warned – it’s quite a long list!

Blindness-Specific Apps:

  • Aipoly Vision – though it has other functionality, I use this mostly for colour identification.
  • Be My Eyes – connects me to a sighted volunteer to interpret visual items.
  • Clew – indoor navigation app. 
  • iMove – GPS navigation app. Lazarillo – GPS navigation app. 
  • Seeing AI – image/text to speech converter; barcode reader, other functionality but these are the ones I use most. 
  • Voice Dream Reader – book and document reader of multiple formats. 
  • Voice Dream Scanner – image/text to voice converter 
  • Voice Dream Writer – document editor. Voice OCR – text to voice converter.

Other Apps:

  • Clever Clues – a word game. 
  • Currency – a currency converter. 
  • Downcast – my podcast player of choice. 
  • Dropbox Facebook 
  • Facebook Messenger
  • Internet Banking app. 
  • GoodReads 
  • Google Maps 
  • LinkedIn 
  • Load Shed CT – app to track scheduled power outages in Cape Town. 
  • Otter AI – a voice to text transcriber. 
  • SayHi – real-time language translator. 
  • Seven Little Words – a word game. 
  • Shazam Skype Speedtest – wi-fi speech checker. 
  • Spotify 
  • TripAdvisor 
  • Twitter 
  • Uber 
  • WhatsApp 
  • Woven Words – a word game. 
  • YouTube 
  • Yr – my weather app of choice. 
  • Zoom

Of course, I also use many of the in-built apps that come with an iPhone. Just because I haven’t listed them doesn’t mean they are not accessible for me to use – they are. At least, for the most part.

You may see that I often have more than one app that does the same or similar things. Mostly that is so I can double-check the information that is being generated by an app using AI. Because I prefer for different apps to give me the same information as a process of double verification. Just to be sure.

If you’d like to know more about how I use the various apps and how I’m able to access them on my iPhone, please drop me a mail or leave a comment

I also talk a lot about the way in which apps help me accomplish tasks in my book A Different Way of Seeing, which is being published on Amazon on 28 October.

What I’d Like You to Know about My Blindness 06: #JustAskDontGrab

The image shows Lois walking with guide dog FijiI was walking to the shops on Main Road in Plumstead. Suddenly, an elderly lady grabbed my arm and pulled me to a stop. She very kindly told me that the traffic was heavy and that she would guide me across the road. Which she proceeded to do, despite my repeated protestations.

You see, I hadn’t needed to cross the road at all.
But there was no way for me to disentangle myself from her grip without possibly hurting her.

When we reached the other side of Main Road, I smiled and thanked her. Then I waited for her to go on her way and crossed back to where I’d originally been. And continued on my way.

Why is it that people feel it’s perfectly okay to reach out and grab me? Even worse, why do they feel it is a good idea to grab my guide dog’s harness and pull her – and me – in whatever direction they think we need to go?

For one thing, grabbing us and pulling us around is dangerous – it disrupts our balance since we are unable to control what is happening. For another thing, few people are trained in how to safely guide a blind person and guide dog. And those who are trained would know better than to grab us and pull us. And let’s not even get into the topic of how on earth you know where we do and do not need to go without actually asking us.

An effective guideline when engaging with a blind or visually impaired person is #JustAskDontGrab.
This is a phrase that was first used in social media by UK blindness activist Dr Amy Kavanagh and quickly spread around the globe.

What this means is that if you see Fiji and I walking around and feel we may need help, #JustAskDontGrab. If we’re navigating our way round a room and you think we might need help finding the doorway or anything else, #JustAskDontGrab. And if you think we may be wanting to cross a road and may like assistance – please, please #JustAskDontGrab!

Because the reality is that we probably don’t need any help at all. But, if we do, then we’ll really appreciate your asking if we’re okay.

What I’d Like You to Know about My Blindness 05: I’m Not Okay with Being Viewed as a Burden

the image shows Lois and Craig at a restaurant table

Many years ago, shortly after I lost my sight, my friend Johan invited me to lunch. He hoped that buying me lunch might soften the blow that he had lost a guitar I had lent him.

While Johan was ordering drinks at the bar counter a man approached him and started telling him how remarkable he was “for taking the blind girl to lunch”. He insisted on buying Johan a beer, presumably as a reward for the service he was doing by spending time with me.

On a number of occasions the same thing has happened when I’m out with my husband, Craig. Total strangers have walked up and told him that he is an amazing man because he is married to me.

It’s almost as if people think that being married to a blind woman must be a huge burden, or that I should consider myself unbelievably lucky to have a husband who is willing to put up with the onerous work that being married to a blind woman must bring.

Here’s the thing: I don’t believe that anyone is doing me a favour by spending time with me.

My blindness is merely one aspect of who I am. It doesn’t mean I am any less competent, less fun, less independent.

I’d like to think I am able to hold my own in most conversations, that I am independent enough not to have to impose on those who are with me, that I have a good sense of humour, and am interested in what is happening in the world around me.

Sure, I may need a little assistance every now and then. But I’d be mortified to think that I was a burden on those who choose to spend time with me.

If all this is true, spending time with me should be just like spending time with anyone else. Not a favour.

Thankfully, Craig is more than happy to take the time to put the matter straight and explain a little about the realities of living with a blind person. And the total stranger walks away a little more knowledgeable than they were.

But when Johan returned to the table and told me what had just happened, he was totally confused that I was upset. I mean, hey, he’d just scored a free beer!

Here’s what it comes down to for me – if you think you’re doing me a favour by hanging out with me, I’d really rather you don’t bother. I’d far rather spend my time with someone who values me for my own sake and for what I have to offer as a person.

If you’d like to understand a little more about the reality of living as a blind person, keep an eye out for my forthcoming book, which will be released in October – I’ll tell you all about it as we get closer to the launch date!

What I’d Like You to Know about My Blindness 04: I Don’t Have Super-Abilities

The image shows Lois using her sense of touch to explore the Athens Museum

You wouldn’t believe how often people ask me if my blindness has given me extra sensory abilities – whether I can hear, scent, and taste better than a sighted person, and have a more sensitive sense of touch.

My honest answer? I don’t think so.

I don’t believe my other senses have improved since losing my sight. But I do believe that I pay them more attention than I did when I was able to rely on my sight. Which means they may appear to be better than they were.

When I was sighted I relied most on my sense of sight to give me input. I believe most sighted people do the same thing. Since losing my sight, I have used the input I gain from my other senses to fill in the gap caused by my visual impairment. My ability to interpret the world around me is dependent on what I can feel, hear, and smell. So I pay far more attention to the input I gain from my other senses than I used to.

When I’m walking to our local train station I use my other senses to help me identify where on my route I am – whether it be the scent of a particular plant, or the sound of a specific dog who always barks at Fiji and myself as we pass. Whether it’s a patch of gravel that helps me realize I am approaching the station itself, or a dip in the road that identifies the spot where we need to turn and cross the road we’ve been travelling for the past 10 minutes. My other senses compensate for my lack of sight and help me navigate the world.

My lack of sight means I experience travel very differently. Of course I miss out on the sightseeing that a sighted tourist would be able to do. But I regularly pick up things that a sighted person, who relies primarily on their sense of sight, might miss. For me, travel is a multi-sensory experience that incorporates every sense I have at my disposal. Which gives me a vastly different, but no less rich, experience of a destination.

When was the last time you focused on the input you could gain from your other senses? Why not take a moment to notice what you hear? Smell? Touch? And see what an extra dimension your world gains. Now, imagine doing the same when you are next in a new city or country.

There is so much that I wasn’t aware of because I was able to use my eyes to interpret the world around me. I’m not saying that my other senses completely fill in what I used to be able to see, but they certainly give me an alternate way to explore the world.

What I’d Like You to Know about My Blindness 03: Don’t Assume I Need Help

Lois using a phone

One day a courier delivered a package to my home. This was back before the pandemic changed the way we live our lives. Back in the day when couriers expected you to actually sign for a delivery.

On this particular day, the courier handed me the parcel and started to walk away.
“Excuse me,” I said, “Don’t I have to sign for the parcel?”
“Don’t worry,” he said in all seriousness, Ï know you can’t write so I signed it for you”
And then he left. While I stood there, stupefied with shock.
It’s not the first time that’s happened. And usually I make a point of calling the courier back and showing him that I am quite capable of holding a pen and signing my name on the delivery papers. But this time it simply happened too fast.

In truth, I can almost certainly do more than people believe I can. I think it’s because they don’t understand the techniques I use to accomplish tasks, and automatically assume it’s not possible. Which is why so much of my work is about explaining the tools and techniques I have at my disposal as a blind person.

Even people who know me well sometimes struggle to understand what I can and cannot manage, and occasionally default to assuming that a task is not possible for me. A colleague who has known me for several years once offered to make tea when she visited me. Because she thought I couldn’t do it myself.

I understand that people are often just trying to help. My husband sometimes gets frustrated when he offers help because he sees me struggling with a task. And it’s true he could probably do it quicker and easier than me. That’s part of the reality of being blind – things just take longer.

So, why do I insist on struggling? Mostly it’s to prove that I can live an independent life, not only to the world, but also to myself. But it’s also because I have a nagging fear that if I fall into the trap of letting others do things for me, that it will undermine my confidence in my own abilities.

While that fear might sound groundless, it’s happened to me before.

After my previous guide dog, Eccles, retired, I spent two years without a guide. During that time I depended heavily on my family and friends to help me get around. And I became exceptionally good at obeying their verbal instructions – when they told me to step up, I would do so; when they tole me to turn right, I would do so. I became a perfect little robot!

What I didn’t realize was that I was slowly losing the ability of interpreting the world around me using my own senses. Until I was on training with Fiji, my new guide dog, and it became horribly clear how out of practise that skill had become. Happily, with a lot of support from the guide dog trainers and my beautiful young Fiji, I managed to rediscover those skills and everything worked out fine.

But that fear is still with me. And it’s one of the reasons I feel uncomfortable letting people help me.

SoObviously, there are some things that I can’t do because of my blindness. And, of course, it’s not always imperative for me to refuse help all the time. But it’s also unnecessary for me to spend every minute of every day proving that I can do things independently. But it’s difficult to find a balance.

What message do I want you to take from this article? There are two – first, to understand why I am sometimes stubborn about struggling to accomplish tasks on my own. And secondly, that I can almost certainly do more than you think I can, even despite my blindness.

Next time you feel compelled to reach out and do something for me, please rather just ask if I need help. Then it’s up to me whether I accept your help, or if I want to do it myself. Even if it looks like I’m struggling, respect my right to make the choice. Even better, ask me what tools and techniques I’m using, so you can understand my world a little better.

What I’d Like You to Know about My Blindness 02: We See Different Things

The image shows a close-up of Lois face.

When I first lost my sight I could see streaks of bright gold light when I was in direct sunlight. Over the years I’ve lost that ability.

Last week I wrote about the fact that blind people are not all the same – that we have individual strengths and preferences in how we accomplish tasks. The same can be said of our blindness – blindness is a spectrum that covers a range of degrees of visual impairment and partial sight.

Basically, I’m saying that we all see different things.

Even those of us who are totally blind may have different experiences of how that appears to us. For me, as an example, I “see” a blank background colour that differs (I think) as a result of the level of light in my immediate surroundings. It can be any base colour from a rose pink to a dark gray. But that’s not all I “see”

My vision is filled with a constant flickering of pure white, gold, green, red, and blue pinpricks of colour that flash on an off as I watch them. I often refer to them as being like visible pins and needles. They are very pretty and are constant – whether my eyes are open or closed.

But most of my friends who are totally blind “see” something different.

Looking beyond those of us who are totally blind, I have friends who have various degrees of residual vision. Some can still see a computer screen, though they need to use a screen magnifier to be able to read what is showing. Some can see blurred outlines of objects around them, but only if there is a significant contrast between the colour of the object and the environment around it. Some have a little usable vision during the day but are night-blind. And some people have eye conditions that mean their levels of vision varies from day to day.

There are almost countless variations on what we can each see as a member of the blindness and visually impaired community. Which is another reason why the tools and techniques we use may differ from one person to another – why some of us use mobility aids like white canes and guide dogs to navigate, where others may seem to be able to navigate around without difficulty in some circumstances and struggle in others. Why some of us have smart phones and computers that talk to us, and why some of us use screen magnifiers. And why on some days a particular person may see something that they may not see on another day.

In truth, visual impairment is a continuum that ranges through a wide variety of visual experiences. And that impacts on the way each individual member of the blind and visually impaired community engages with the world.

What I’d Like You to Know about My Blindness 01: We’re Not All the Same

the images show hands tracing across a braille bookI’ve been thinking a lot about what I’d like people to know about my life as a blind person – things that I wish were more commonly known that would foster greater inclusion of the visually impaired community into society and the workplace. Because they would help people to understand my world a little better.

I thought it might be useful to share some of the things I wish people knew about blindness in general, and my blindness in particular. This is the first of a series of articles in which I’m going to do just that.

The first thing I’d like you to know is that we are not all the same.

I understand how tempting it is to assume that all blind people are the same – that we all use the same techniques, can do the same things, and have the same preferences. But it is just not true. We are all different. While we may have blindness in common, we are individual people with individual strengths, skills, likes and dislikes. And we may use different techniques to accomplish a task. I have blind friends who can do things that I cannot. And visa versa.

Let me give you a few examples.

I am a guide dog user. I love having the ability of navigating the world around me with my beautiful Fiji walking beside me. Many of my visually impaired friends prefer to use a white cane. Both are effective ways of getting around. Neither is better than the other. They are simply different.

the images show Lois sitting at a computerI am not a braille user. I know how to read braille, but prefer accessing information on my computer using a screen reader, which is an audio programme that reads what is on the screen. That’s just my preference. Yet I know of many blind and visually impaired people who prefer using braille to access information. They have a braille display for their computer, read books in braille, and use a braille keyboard on their smart phone. Others may use a combination of audio and braille. It depends on each person’s preference.

A few months ago, my husband and I went to our local Mugg & Bean. I was presented with a braille menu. Which would probably have taken me a month to read – while I know the alphabet, my braille reading skills are almost non-existent. At the same time, I think it is commendable that the Mugg & Bean chain have braille menus for those who need them. Because many visually impaired customers will appreciate them.

I feel I ought to repeat the point of this article – to show that each individual blind or visually impaired person is unique. Some of my visually impaired friends will probably disagree with some of the articles I write in this series. And some will agree. Because we are not all the same.

So, while I would love for you to join me for this whole series of articles, please don’t fall into the assumption that what is true for me is also true for any other blind person you encounter. Chances are that they will feel much as I do – but it’s always better to take a little time to ask them about their own experiences and preferences.

Any idea what I’m going to write about next? Why not join me next week and find out…

Blindness, the Sense of Touch and Social Distancing

the image shows Lois wearing a mask 
the image shows Lois wearing a mask

Touch is important for a person who is visually impaired. It is one of the easiest ways to discover information about an object or the environment, either using your fingers or the tip of a white cane. But touch is also fundamental to the way a blind person communicates with other people. Which adds yet another level of complexity to the way we operate as we try to safeguard ourselves against COVID-19.

What do I mean by that?

When a sighted person is taught how to attract the attention of someone who is visually impaired, they are told to lightly touch the person on the arm or shoulder, and then identify themselves. Obviously, this isn’t an option when trying to social distance. Here’s a few suggestions I think might be an alternative.

Let’s say you are walking down a street with several people around, and see me approaching. If you know me, you can simply call out my name to attract my attention – from a safe distance, of course.

If you don’t know my name, it becomes harder. Unless I have Fiji with me, in which case I’ll probably take notice if anyone refers to me as the woman with the guide dog – I mean, how many women with guide dogs are likely to be nearby?
If I don’t have Fiji with me and you need to attract my attention, you could try referring to something specific about me or what I’m wearing – like calling me the lady in the red jersey, or woman in the blue raincoat. If you just try to attract my attention by calling out, “Excuse me!” I’m probably not going to pay attention – I’ll assume you’re talking to someone else and just continue on my way.

So, if you’re trying to attract my attention without needing to touch me, call out to me from a safe distance in a way that I know it’s me you’re talking to.

Touch is also fundamental when a visually impaired person is being guided by someone who is sighted. Even though we are trying to avoid unnecessary trips away from home, sometimes they are necessary. And sometimes we need a sighted person to guide us.

When this happens, the blind person would usually place a hand lightly on either the elbow or the shoulder of the person guiding them. Again, here are my thoughts on a few alternatives, taking the risk of COVID-19 into account.

Depending on the particular situation and what the people involved are comfortable with, there are several ways of guiding a visually impaired person. In the ideal world, a sighted assistant could walk a few steps ahead or beside me, and I would use my white cane or Fiji to follow them. It would make it easier to do so if the sighted assistant speaks or gives some other audio cue for me to follow. That way there would be no physical contact between me and the sighted assistant.

There are other ways to do it – using my white cane as a form of tether with each of us holding one end or, using some other form of tether like blind runners do. That way there would be some distance between me and the sighted assistant, while still giving us a secure way of remaining connected.

As a final suggestion, if physical contact cannot be avoided, I’d probably rather place a hand on the sighted guide’s shoulder and walk slightly behind them. Especially with the current recommendation to cough into your elbow, I’m certainly not going to be holding anyone there.
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As always, it’s best to ask the individual visually-impaired person what works for them – these are my preferences, but we are all different. So, it’s best to ask.

I’d like to thank members of the LCS Assistive Technology community for sharing their ideas on both these questions – I really appreciated your confirming my thinking on these topics.

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