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An Unexpected Mask Complication

the image shows Lois wearing a brightly coloured mask, standing outside with her guide dog, Fiji.

Like most South Africans, I was excited when we were allowed to exercise at the start of Level 4 lockdown. To be honest, the ability to get out and walk with my highly frustrated guide dog was wonderful. I didn’t even mind having to wear a face mask. Yet, when it came to our first walk, I encountered an unexpected problem

As I stepped outside my garden for the first time in six weeks, with a deliriously happy guide dog at my side, I realized the mask I was wearing was restricting my hearing. Not too much, but enough that I was aware of it and it made me a little anxious about walking.

I use my hearing as an important tool to help me navigate the world around me. Usually, I use it to listen for approaching traffic. Now, when we need to be aware of social distancing, hearing also helps when that traffic is made up of other people. Particularly with more people around due to the limitation on the hours we’re allowed to exercise.

Obviously, the most important criteria for a mask is that it must be as effective as possible in preventing me from potentially catching the virus. What’s the point, otherwise? It must cover my nose and my mouth adequately and be secure enough that it’s not going to slip off my face. Beyond that, I’ve learned that some designs work better for me than others.

If I can, I’ll prefer not to wear a mask with loops that hook behind my ears to keep them in place. Because that’s what affects my hearing. Rather, a mask that ties behind my head allows my ears to be free and my hearing is unobstructed. Although I need to be sure the mask is tied tightly enough that it won’t come undone when Fiji and I are out and about.

My favourite mask so far is the one I’m wearing in the image – not just because the bright colours make it beautiful to look at – yes, masks can be fashion accessories these days – but mostly because it is held in place by two pieces of elastic that I pull over the back of my head. It is secure and my hearing is unobstructed. So that’s the first mask I reach for when leaving the house.

Make no mistake, I’ll use a mask that is held in place by other means when that particular one is in the wash. After all, it’s more about managing risk than being comfortable. But it’s definitely my preferred mask.

I am grateful that I am able to have a selection of masks to choose from. I know many of our people are not so lucky. If I only had a mask that restricted my hearing, I would wear it. But I’ll admit I’m grateful to have masks that not only work well, but are also safer for me when I walk.

Are You Helping or Harming?

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Date: 24 March 2020
Category: Disability Awareness, Audio,
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**Craig, not sure if the podcast link will provide us with an image; please let me know
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You’re walking down a road and see a person with a guide dog or a white cane approaching you. Do you offer to assist them? And if so, how?

One day, an elderly woman grabbed my arm and propelled me across a busy road. Then she walked off, no doubt feeling good for assisting the poor blind lady. Here’s the thing – I didn’t need to cross that road. But she didn’t give me the chance to say so.

The topic of how to engage with a visually impaired person and offer help became a hot topic on social media recently, due primarily to Dr Amy Kavanagh’s #JustAskDontGrab campaign. The campaign aims to change the way sighted people offer assistance to those of us in the VVI (blind and visually impaired) community.

In many ways I agree with the aims of the campaign. If I’m standing at the top of a flight of stairs figuring out the safest way to navigate them, I might get startled if someone suddenly reaches out and grabs my arm. It puts me at risk of losing my balance and falling down those stairs. So, #JustAskDontGrab has its place.

But truthfully, it’s a bit more complicated than that. What if there isn’t time to connect verbally before I put myself into danger? What if it’s a noisy or busy environment where I might not realize you’re talking to me? You need to consider what’s happening there and then.

But here’s the thing, most blind and visually impaired people who are out in the world are very capable of navigating our way around it. Almost all of the time. Except for the very rare occasion when we’re not. And we’ll usually ask if we need help.

Am I saying you should never offer assistance to a member of the VBI community? By no means. Because maybe it’s the one time we actually do need assistance. Just please, , rather than reaching out and grabbing our arm, or our guide dog, rather verbally ask if we need help. And, if you think we might not hear you, lightly touch our arm and then ask.

It sounds so simple, right? Yet, there’s so much happening in that moment that you reach out – metaphorically, of course – to offer assistance. And that’s the subject of a conversation Jeff Thompson, of the Blind Abilities Podcast Network, and I had a few weeks ago.

I’d love for you to listen to the podcast and let me know what you think. Whether you’re sighted or a member of the VBI community, I’m interested to know your thoughts.

Besides, you never know – it may help next time you’re walking down the road and see a person with a guide dog or white cane and try to figure out whether or not to offer assistance.

Here’s the link.

Going Solo

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Do you have any idea how bizarre it was for me to realize that I’m using my white cane to walk around independently for the first time ever?

Please don’t think I wasn’t taught to use a white cane when I first lost my sight. I was. But somehow the only time I used my white cane was on my lessons with the O&M instructor. Otherwise I asked family, friends, and fellow students to help me get around. Which is probably why getting a guide dog was such a revelation to me – I was able to walk around independently for the very first time.

In my defence, and in hindsight, I’d probably say that my inability… refusal? to connect with the idea of using a white cane was part of my adjusting to losing my sight. I was dealing with so much at the time, and learning so many new skills of living as a blind person, that my poor overworked brain just couldn’t cope with it all. And it was just easier to ask people to help me get around.

And that became the pattern. Even once I started working with a guide dog, on the rare occasions my dog wasn’t with me, I’d need someone to help me get to where I needed to go.

So, walking round my neighbourhood totally on my own, accompanied only by my white mobility cane, is such a profound difference for me.

It doesn’t mean I’m going to depend on my beautiful guide dog any less. I can’t even begin to find the words to describe the remarkable bond that exists between Fiji and myself – and how natural it feels to work with her. But it’s great that I’m developing cane skills for those times when she’s not able to be with me.

Talking about how natural working with Fiji feels, I found myself praising my white cane when I encountered a car parked on the side of the road on one of our walks… but at least I didn’t try to give it a treat for good behavior!

At least, not yet! ….

And now to move onto another topic for a while, in case you’re bored of hearing about my O&M lessons!

Explaining the Realities of Blindness to Architects

Cds 2017 04 18 20 49 34“So, how would you navigate your way round a large public space in a shopping centre? What technology would help you do that?”

Those were two of the questions I was asked when Fiji and I spoke at an architectural company who specialize ? in designing shopping centres, school and university campuses and large apartment buildings. It was one of those sessions where I really got to test my own knowledge and skills in trying to offer the architects suggestions on how to make their designs more friendly to blind and visually impaired people, both those of us who work with a guide dog and those who prefer using a white mobility cane.

More importantly, it got me thinking about how much I’ve learned over the past two years – if someone had started asking me things like that when I first sat down to write A Different Way of Seeing, or when I first started working with Fiji I probably would have been lost for words… or at least lost for ideas to put into words. Yet, when I was standing in front of the team of architects I found myself not only able to answer the questions but to offer a few thoughts on emerging technologies that may really help architects to design large public spaces that are accessible to those of us without sight.

Of course, I had the added advantage that Fiji was being her usual beautiful and talented self, so I could probably have got away with it even if I hadn’t been able to answer the questions posed by the architects… but I could, so her being beautiful and talented was merely an added bonus!

I really enjoy doing this kind of work, and Fiji loves doing any kind of work, so it was a wonderfully stimulating day for us both.

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